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@chesneydell1965

Im new in April i was told i have sarcoidosis of the lungs no scaring of the joints and skin. Looking for anwers scard i would like information, who can show a rookie the ropes

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Replies to "Im new in April i was told i have sarcoidosis of the lungs no scaring of..."

Hi,
Sounds awful. Fear however won't help. Maybe you should tell your doctor about how upset you are and get something to help you approach this more calmly.
What treatments have you had and what medications, if any, are you on?
When were you diagnosed and where?
Looks like the usual treatments are immuno suppressants and that the course may be varying or even remitting.

http://www.mayoclinic.org/diseases-conditions/sarcoidosis/diagnosis-treatment/treatment/txc-20177973

Looks like one of those vague autoimmune conditions that is not well understood.

Hope this helps.