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Sarcoidosis: What treatments have you had with few side effects?

Lung Health | Last Active: Jun 25, 2023 | Replies (61)
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@chesneydell1965

My husband isvtakibg the same meds also vicodin and is still in awful pain . We filed for disability and was turned down

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Replies to "My husband isvtakibg the same meds also vicodin and is still in awful pain . We..."
Ricky S | @rickys | Aug 24, 2016

I'm starting my 6th year with sarcoidosis . Been to best doctors locally, been to Mayo and have tried all possible meds. Nothing has helped!! Nerves to my eyes are gone. Can barely see . Deaf in one ear. Joint pain. Fatigued . Neuropathy in legs . Abdomen hurts continually. Low grade fever off and on. About the only place clear is my lungs . No sign of it there. A year ago applied and was approved for disability with no problem. Hate to share , but no luck here !!<br><br>

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Colleen Young, Connect Director | @colleenyoung | Aug 24, 2016

Thanks for coming back to share on Connect, Ricky! You'll see Connect has changed quite a bit since you last visited. Neuropathy is a huge topic on Connect. You may wish to join this discussion https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/

I'm sure @chesneydell1965 will appreciate hearing from someone who is travelling the path before her/him. Interesting how sarcoidosis has spared your lungs, and it is where the disease started for Chesney.

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darlenecaywood164 | @darlenecaywood164 | Jun 25, 2023

Everyone is turned down the first time, keep trying, God Bless!

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