← Return to Sarcoidosis: What treatments have you had with few side effects?
DiscussionSarcoidosis: What treatments have you had with few side effects?
Lung Health | Last Active: Jun 25, 2023 | Replies (61)Comment receiving replies
Replies to "I am so absolutely exhausted with my Sarcoidosis which has spread through most of my body...."
Hi I'm Chesney wife Tammi I feel very lost too on how to help my husband
It's OK to vent Robyn, it's good for you! I have an autoimmune disease and it is hell. I'm to the point where I can take almost nothing. It's so hard and it can sure feel like it has taken your life away. It's good to hear you are able to connect with your kids when you can. My daughter was often the "mom" and as soon as she got her drivers permit, she became the primary driver. Let them help you if you need and don't feel bad about it. I went to Mayo a few months back and wrote about my experience, you can find my story here if you'd like to read it. https://medium.com/@michelledigiacomofitzgerald/mayo-clinic-americas-calcutta-bfd60d9e326#.49yh2rjo4
We see a great Dr in fort Wayne Indiana John Collins the NEURO center. He is helping us and listening