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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)
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@georgiamartin

I am having same problems! Diagnosed with enlarged pituitary this last summer and have incredible pain n my joints, muscles and nerves, feel as if my joints are dissolving, getting worse daily!!Endocrinologist found a low sodium level, so was on restricted fluid for several weeks, getting blood tests every day for a week, sodium level back up to normal, still no change🤷🏼‍♀️!
Neural surgeon wants to “wait and see”, new MRI is in July!!
Meantime I am suffering and getting worse every day!!
Found a new GP, thankfully, who LISTENED, and is sending me for a bunch of blood tests and referring me to a chronic pain clinic!
Any suggestions gratefully accepted

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Replies to "I am having same problems! Diagnosed with enlarged pituitary this last summer and have incredible pain..."
sturns | @sturns | Dec 2, 2022

Try and go to palliative care, they carry more weight than a pain clinic does. These days it is hard to get pain meds do to the reaction of the masses and scare tactics from the news. This is what it is for. Good luck.
Anthony

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Dec 2, 2022

@georgiamartin - It must be difficult to live with that pain for so long and no answers.
Did your Endocrinologist test for all the pituitary hormones?
It seems like a long time to wait so many months for another MRI. What does the Endocrinologist say about that?

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