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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@susie333

I'm scheduled for the 6 minute walk end of this month. my resting heart rate once 02 was started is in the hi 50s. before 02 anytime I'd get up and move around in house it would spike up and make me feel more SOB. that has really subsided alot!

my BP has been on the higher end the past 3 yrs but I've refused Rx for that as I feel it's somehow related to the SOB and low 02.
my mom had pulmonary hypertension so sometimes I wonder about that. she had bronchiectasis for almost 50 yrs.

my daughter had covid and went home on 02. but almost a year later she has moved to Albuquerque, over 6300 ft elevation without 02!. but she definitely has residual anxiety and PTSD.

honestly I don't mind using 02 as it has helped me feel so much better!

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Replies to "I'm scheduled for the 6 minute walk end of this month. my resting heart rate once..."

I definitely have major anxiety and PTSD. Wondering if I'm going to collapse again because this thing sneaks up with 0 warning. I had high bp but after this it's normal. I was thinking of DNR if this keeps happening without a reason. I'm not living life like this at 58. When my heart rate spikes like that I cant go far or do much so I cant make plans. I never know if my body will be good or crazy high from one day to the next. I'm definitely depressed and feeling isolated. Thank you for replying. ❤