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← Return to Occipital Neuralgia
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Hello @lakesofdelray and welcome to Mayo Clinic Connect. I see that member @oliverony has come in to share some information with you.
Since there was an existing discussion on the topic, you will see that I have moved your post here:
- Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/
I did this so you may connect with more members such as @patsy5 @lisa2022 and @rwinney. How long have you suffered from these episodes?
Replies to "Hello @lakesofdelray and welcome to Mayo Clinic Connect. I see that member @oliverony has come in..."
Hello @lakesofdelray, welcome.
Isn't it awful, the burning pain? I'm sorry you're struggling . As you'll find, self-management can play a pretty big role in addition to medication and treatments. Calming the CNS was a whole new task I needed to learn as complimentary therapy.
I tried Botox, nerve blocks and ablations to no avail. What types of treatment are you currently receiving? Are they helping?
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I've had the ON for a little over a year now... before it was Trigeminal Neuralgia ( which comes and goes) but the Occipital Neuralgia is always present. It can be very mild and extreme... I do my best not to let it get extreme. I am using many methods to manage muscle tension and pain. Latest is Botox... still not sure if it's helping. I will do a second round in about a month.