Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Posted by bflattenor @bflattenor, Aug 6, 2018

Does anyone have B-PLL or have been a caregiver for someone who has or has had B-PLL? I need to communicate with someone who understands.

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81ue... | @81ue | Nov 11, 2022

In reply to @81ue "B-PLL is too 'heterogenous' and they probably just gave up on it as being a separate..." + (show)

Rather than a new label, my bone marrow biopsy was very good, I'm trying something new, will be off medication now. Such great news. I hope to stay in remission.

Lori, Volunteer Mentor | @loribmt | Nov 11, 2022

In reply to @81ue "Rather than a new label, my bone marrow biopsy was very good, I'm trying something new,..." + (show)

That’s awesome news, @81ue! Pretty cool no longer ‘being labeled’ at all except for a Remission badge with your name on it! ☺️ How often will you have followup appointments?

81ue... | @81ue | Nov 14, 2022

Thank you Lori, I begin monitoring with monthly blood tests for the next half year and we'll adjust the monitoring depending on those results. My doctor saved my life and is happy with my bone marrow biopsy result and that I made it ( 2 hospitalizations and aggressive super mutant blood cancer). I hope others can get access to try and get great results from Venclexta/Rituximab types of combos too.

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