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MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

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@gingerw

@pcb Just as @pmm mentioned, tell your doctor you are anxious about your situation, that you want to hear from him/her that everything is going well. Sometimes doctors forget that what is so familiar to them is a mystery to us as a patient, and they need to be reminded. It will make a better relationship with your medical team.

I had MGUS that unfortunately evolved to smoldering myeloma and then into multiple myeloma. As I tell people, my case is not the normal timeline at all. I have other health concerns, too. And, being an overachiever all my life, that extends to health conditions. The vast majority of people go a long time with no indication of MGUS becoming more of a concern.
Ginger

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Replies to "@pcb Just as @pmm mentioned, tell your doctor you are anxious about your situation, that you..."

Thank you for your kind response. I am sorry for the course your mgus has taken. Take kind care of yourself.