← Return to Cirrhosis of the Liver: What to expect when waiting for a transplant?

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@mylifebe4u

Thank you so much. This information really makes me feel a little better. No one has ever even indicated how long someone can go on when you have this condition. This gives me a lot of hope.

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Any time if you need more info we can be contact here in this group

@arqui02000, my name is Sandi and have recently become a patient advocate for liver disease with the American Liver Foundation and also have cirrhosis of the liver stage 4. I was diagnosed in May of 2020 and spent 16 days in the hospital under the care of the Northwestern transplant team. I was very unstable and discharged with high mortality rate (I found this verbiage in MyChart this year in doing some research ..sad times). Fast forward to today, I am 53 and grateful to be here today to type this message. I have alcohol related liver disease (ALD) and would like to ask if you would like to talk as my fellow advocate and I are trying to find more advocates with ALD. I am finding that helping others in this journey brings me peace as I wish I had found Jenn when I was first diagnosed.
@mylifebe4u My thoughts are with you on your journey. There are many many resources for you on the ALF and AASLD sites that would give you valuable information regarding liver health and also inspiring stores about new research on the horizon for us. Please feel free to reach out to me as well if you would like to review more. I personally think that Dec. 8th awhile to wait. What city are you in? If you are in a city with more than one choice of hepatologists, you can review all hospitals in your area that are transplant centers. Also, make sure they have you on the waitlist. You may have already done these things, but sometimes with stage 4 liver, I know my mind is not always as sharp as it used to be. I wish only the best.