← Return to MGUS: Please, let me know I not alone
DiscussionMGUS: Please, let me know I not alone
Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)Comment receiving replies
Replies to "The blood work has been done every six months. My doctor is excellent but does not..."
@pcb Just as @pmm mentioned, tell your doctor you are anxious about your situation, that you want to hear from him/her that everything is going well. Sometimes doctors forget that what is so familiar to them is a mystery to us as a patient, and they need to be reminded. It will make a better relationship with your medical team.
I had MGUS that unfortunately evolved to smoldering myeloma and then into multiple myeloma. As I tell people, my case is not the normal timeline at all. I have other health concerns, too. And, being an overachiever all my life, that extends to health conditions. The vast majority of people go a long time with no indication of MGUS becoming more of a concern.
Ginger
Doctors are busy. It is their job, however, to treat you. All of you. Anxiety can raise your white count and make you actually feel sick. Schedule some time for a consultation and write down all your questions in advance.
If your doc can’t spend that time with you ask him or her for a referral to another doctor.
I worked in a busy teaching hospital for 15 years and as a medical social worker I arranged for thousands of these conversations.
The mind-body thing is real. It is normal to feel anxious after getting this diagnosis. Even after a year+ I can still get a little crazy with the “what ifs.” When I feel my calm eroding I pull it back. Time with nature, friends, fun stuff I enjoy, music, exercise…(okay, not enough exercise)…projects at home, community involvement, cooking and when all else fails, talking to a therapist.
Just don’t sit with it and feel miserable.
As time goes on you relax more and it’s easier.
Hugs.
Patty