5yrs of terrible pain

Posted by sprinrosa64 @sprinrosa64, Nov 5, 2022

After TKR I have been stuck with terrible pain with no answer , I am always searching for an answer and was wondering if anyone has had experience with Calmare or Scrambler therapy

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@notmoff

I am unsure where to post this, but perhaps volunteers Rachel and Jennifer have some feedback about the following list of books recommended to me by Kaiser Regional Chronic Pain programs:

• Buddha’s Brain: The Practical Neuroscience of Happiness, Love,
and Wisdom by Rick Hanson, PhD, and Richard Mendius, MD
(available for purchase in the KP Health Education Department)

• They Can’t Find Anything Wrong! 7 Keys to Understanding,
Treating, and Healing Stress Illness by David D. Clarke, PhD

• Writing to Heal: A Guided Journal for Recovering from Trauma
and Emotional Upheaval by J. W. Pennebaker

• The Little ACT Workbook by Michael Sinclair, PhD

• The Mindful Self-Compassion Workbook: A Proven Way to Accept
Yourself, Build Inner Strength, and Thrive by Kristin Neff, PhD, and
Managing Your Pain Participant Workbook 130
Christopher Germer, PhD

• The Brain’s Way of Healing by Norman Doidge, MD

• Living Beyond Your Pain: Using Acceptance and Commitment
Therapy to Ease Chronic Pain by JoAnne Dahl, PhD, Tobias
Lundgren, MS, and Steven C. Hayes, PhD

• Managing Pain before It Manages You by Margaret Caudill, MD,
PhD

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See - Dr. Jackie Gardner-Nix
“The Mindfulness Solution to Pain: Step-by-Step Techniques for Chronic Pain Management”

The Book -
https://books.google.com/books?id=8E76YXW6lowC&printsec=frontcover&dq=inauthor:%22Lucie+Costin-Hall%22&hl=en&newbks=1&newbks_redir=0&source=gb_mobile_search&sa=X&ved=2ahUKEwjogO6Zo6P7AhXqrYkEHdkiB3MQ6AF6BAgGEAM
The website (select Patient Courses in the menu -
https://neuronovacentre.com/
NeuroNova Centre for Mindful Solutions on YouTube:

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Rec'd the most benefit from managing my pain from the Psychiatrist and the GP. The several pain mgt. specialists, neurologists, etc. were of little benefit in helping to abate the pain.

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@notmoff

I am unsure where to post this, but perhaps volunteers Rachel and Jennifer have some feedback about the following list of books recommended to me by Kaiser Regional Chronic Pain programs:

• Buddha’s Brain: The Practical Neuroscience of Happiness, Love,
and Wisdom by Rick Hanson, PhD, and Richard Mendius, MD
(available for purchase in the KP Health Education Department)

• They Can’t Find Anything Wrong! 7 Keys to Understanding,
Treating, and Healing Stress Illness by David D. Clarke, PhD

• Writing to Heal: A Guided Journal for Recovering from Trauma
and Emotional Upheaval by J. W. Pennebaker

• The Little ACT Workbook by Michael Sinclair, PhD

• The Mindful Self-Compassion Workbook: A Proven Way to Accept
Yourself, Build Inner Strength, and Thrive by Kristin Neff, PhD, and
Managing Your Pain Participant Workbook 130
Christopher Germer, PhD

• The Brain’s Way of Healing by Norman Doidge, MD

• Living Beyond Your Pain: Using Acceptance and Commitment
Therapy to Ease Chronic Pain by JoAnne Dahl, PhD, Tobias
Lundgren, MS, and Steven C. Hayes, PhD

• Managing Pain before It Manages You by Margaret Caudill, MD,
PhD

Jump to this post

Hi there @notmoff -
These are fantastic resources! Thank you for providing such a helpful list. I think its pretty awesome that your chronic pain program recommended a wide range of neuroplasticity and cognitive behavioral resources to help self-manage chronic pain.

I'm tagging @jenniferhunter so she will notice your post. I'm sure she'll be interested. As for me, I have not read any of theses books, but do follow their recommended practices as part of my daily chronic pain-management plan. I began learning a lot through my own research and application, but Mayo Clinic's Pain Rehabilitation Center pulled it all together for me.

How are you doing in your daily journey? Have you found useful and helpful tools or practices that help you manage?

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@rwinney

Hi there @notmoff -
These are fantastic resources! Thank you for providing such a helpful list. I think its pretty awesome that your chronic pain program recommended a wide range of neuroplasticity and cognitive behavioral resources to help self-manage chronic pain.

I'm tagging @jenniferhunter so she will notice your post. I'm sure she'll be interested. As for me, I have not read any of theses books, but do follow their recommended practices as part of my daily chronic pain-management plan. I began learning a lot through my own research and application, but Mayo Clinic's Pain Rehabilitation Center pulled it all together for me.

How are you doing in your daily journey? Have you found useful and helpful tools or practices that help you manage?

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to @rwinney - I'm newly homebound, awaiting library delivery of a few of those pain books Kaiser listed for me. I have a long way to go in my search for some pain relief with no real lessons learned other than following the impulse to persist when it seems realistic. I value Mayo Connect's providing this sharing forum!

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@notmoff

to @rwinney - I'm newly homebound, awaiting library delivery of a few of those pain books Kaiser listed for me. I have a long way to go in my search for some pain relief with no real lessons learned other than following the impulse to persist when it seems realistic. I value Mayo Connect's providing this sharing forum!

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@notmoff I'm sure glad you found us here on Connect! It is a wonderful forum to receive support, encouragement, and share valuable information and experience.

You mention having a long way to go in your search for pain relief. How long has your pain journey been? What steps have you taken thus far? I get the feeling you may be trying to move past the exclusive hope that medications and procedures are enough to do the job. Am I correct? Please fill me in.

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@rwinney

@notmoff I'm sure glad you found us here on Connect! It is a wonderful forum to receive support, encouragement, and share valuable information and experience.

You mention having a long way to go in your search for pain relief. How long has your pain journey been? What steps have you taken thus far? I get the feeling you may be trying to move past the exclusive hope that medications and procedures are enough to do the job. Am I correct? Please fill me in.

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@rwinney - My pain started when I was T-boned in a VW bug in the mid 70's. There was no real help from Kaiser other than a pair of crutches. Friends shopped and laundered for me until I could take a step without screaming from the pain and falling. With peripheral neuropathy and spinal compression fractures for the past 10 years, the pain has worsened but now I know to take about 2250 mg/day of Acetaminophen so I can provide very basic care for myself. I've also learned to avoid nsaids and opioids that cause me more pain. Distraction by watching Chef SJ interviews on you tube helps.

Wish I had more words of wisdom other than to just be attentive on these groups, not give up and have my only fear of death be fear of dying in even more pain.

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@notmoff

to @rwinney - I'm newly homebound, awaiting library delivery of a few of those pain books Kaiser listed for me. I have a long way to go in my search for some pain relief with no real lessons learned other than following the impulse to persist when it seems realistic. I value Mayo Connect's providing this sharing forum!

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Do you know what triggered your pain. Trauma infections bad reactions to a drug ?

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My pain neurapathy etc started after I took The antibiotic cipro

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@4846

Do you know what triggered your pain. Trauma infections bad reactions to a drug ?

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@rwinney - My original pain was trauma from the car accident in the mid 70's - never really described or even acknowledged by Kaiser apparently because there were no outward signs of damage . I was told I survived the accident by the fire department who extracted me with the "jaws of life" because I had the original seat belt somewhat re-designed into a shoulder belt. The inattentive driver's heavier car drove left into the driver's side (me) when I was travelling about 40 mph and pushed my VW bug way out of the intersection.

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@notmoff

@rwinney - My original pain was trauma from the car accident in the mid 70's - never really described or even acknowledged by Kaiser apparently because there were no outward signs of damage . I was told I survived the accident by the fire department who extracted me with the "jaws of life" because I had the original seat belt somewhat re-designed into a shoulder belt. The inattentive driver's heavier car drove left into the driver's side (me) when I was travelling about 40 mph and pushed my VW bug way out of the intersection.

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It sounds like a miracle that you survived. Wow! I can only imagine you've had many years of challenges. Your positive, never give up attitude is one if your best medicines.

My mom was t-boned while driving her motorcycle in 1978. She was 28 years old then and I've witnessed her perseverance along the way. Not an easy life but she sure has made the most and done the best she can.

You both are inspirational humans! 👏🏼

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