@pcb Welcome to Mayo Clinic Connect! When we get a diagnosis that may lead to additional issues, it is normal for our minds to run off and possibly create worst-case scenarios. Been there, done that! Please take a deep breath and relax.

I'm glad you have read posts here that show you many people go for a very long time with no advancement of disease. How often are you getting bloodwork to monitor your condition? Any questions you have for us?!
Ginger