Hello to all,

I'm going on the assumption that previous entry dates that don't show a year have been posted in the current one. I am 65 - Medicare has kicked in - and up until recently in overall good health; no problems, no medications, etc., living in Portland, Oregon.

While shaving last March I noticed a swelling on the right side of my neck which I called to the attention of my PCP on a following unrelated visit. Short story: I was referred to an ORL specialist whom I did not get to see until August; she felt a biopsy was needed to make further diagnosis.

Biopsy results came back in September showing a Squamous Cell Carcinoma of a Lymph node requiring further testing to try identify any primary source. I underwent a laryngoscopy/biopsy (9 points in the tongue/tonsil/throat area, under anesthesia) and a full PET Scan in October.

Yes, weeks and months go by... The tests revealed No Primary source of Cancer so the diagnosis has become: Cancer [of] Unknown Primary or CUP.

The treatment now being suggested is a mix of daily radiation for seven (7) weeks with weekly dosing of chemotherapy (Cisplatin) to reinforce the action of the radiation. I'm sure I do not need to explain the side effects of such a treatment even if I don't know how it will affect me personally.

At this point I'm just asking myself a certain number of questions from quality of life to financial risks. To put it differently I don't want to end up impotent, penniless and looking at endless tests/treatments down the road.

I'm sorry not to be able to offer advice at this time but would greatly appreciate any and all suggestions on avoiding any pitfalls at this time. Should one "shop around" for care centers, insist on second opinions, look into other treatment options? The literature out there can be all over the place, hospital brochures offer rosy outcomes and "Care Teams" don't always communicate very well. I will make sure to communicate my own findings here.

My very best to all, patients, families and friends,

M.