I’m so sorry you’re going thru all of this. I’m in the same boat - my hubby has been on hospice care for over 100 days for stage 3b esophageal cancer, myasthenia gravis, and pacemaker placement due to total heart block. Things have been stable for a while, not much change in my husband’s condition. Just recently I’m noticing a small decline in his health status and hospice is also noticing it. It’s like you’re waiting for the other shoe to drop. I constantly worry if today is going to be the day that he gets worse and stays bedridden. No one can give you a specific timeline as to when or how your loved one will decline or pass away. I cry a LOT by myself. I have support of family and friends but they sometimes just don’t understand what I’m going thru as a caregiver. Hardest thing I’ve ever done in my life is caring for him, but I’m so blessed that I am healthy enough to do so. Take a few hours and go somewhere to recharge if you can. That always helps me, and believe me we as
Caregivers need that!! I’m sending you BIG hugs and if you ever want to reach out and chat, you’re always welcome to contact me personally. I hope you can find some comfort and peace thru all of this. No doubt, it’s terribly hard.