1. < Esophageal Cancer

Just diagnosed with gastroesophageal adenocarcinoma. Very scared

Posted by skwwatkins @skwwatkins, Aug 5, 2021

My husband was just diagnosed with gastroesophageal adenocarcinoma. We are very scared. Second opinion. And has anyone had this.

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mcmuck29 | @mcmuck29 | Nov 7, 2022
In reply to @kissingrhino "I had my port in today, 2 more scans Wednesday. Then Oncologist on Monday to talk..." + (show)
@kissingrhino

I had my port in today, 2 more scans Wednesday. Then Oncologist on Monday to talk about treatment. I start chemo on the 28th, having a rough time dealing with whole thing.

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It is scary and a road of lots of unknowns. I hope you find some support and hope in these comments and I hope that you have a good support system to help hold you up throughout the process. As hard as it might seem a positive attitude and a great support system will help you through it. Sending you lots of support and prayers.

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naomicanada | @naomicanada | Nov 8, 2022
In reply to @mcmuck29 "They did but unfortunately Doug had a “leak” and was rehospitalized and then developed blood clots..." + (show)
@mcmuck29

They did but unfortunately Doug had a “leak” and was rehospitalized and then developed blood clots so he missed the window of opportunity for the immunotherapy. If the timing would have been better our oncologist was supporting it for Doug.

How is your mother progressing?

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She had her first dose of immuno last week.
Tired and scared it might come back …
She take 2 TOMS before going to bed and it helps with the night reflux.
Im scared I have to say that it will come back.

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sjw6358 | @sjw6358 | Nov 8, 2022
In reply to @kissingrhino "I had my port in today, 2 more scans Wednesday. Then Oncologist on Monday to talk..." + (show)
@kissingrhino

I had my port in today, 2 more scans Wednesday. Then Oncologist on Monday to talk about treatment. I start chemo on the 28th, having a rough time dealing with whole thing.

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i am meeting with surgeon today. tomorrow i have pet scan at 930, mapping at 2, then meeting with oncologist for pet scan results at 430...fear is overwhelming so i am not dealing with it well so far either...sort of like groundhog day !

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1 reply
kissingrhino | @kissingrhino | Nov 8, 2022

I understand fear is overwhelming I am hoping for all of us.

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mcmuck29 | @mcmuck29 | Nov 8, 2022
In reply to @sjw6358 "i am meeting with surgeon today. tomorrow i have pet scan at 930, mapping at 2,..." + (show)
@sjw6358

i am meeting with surgeon today. tomorrow i have pet scan at 930, mapping at 2, then meeting with oncologist for pet scan results at 430...fear is overwhelming so i am not dealing with it well so far either...sort of like groundhog day !

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I understand the fear…move forward each day as best you can and know you have lots of support there to help.

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1 reply
sjw6358 | @sjw6358 | Nov 8, 2022
In reply to @mcmuck29 "I understand the fear…move forward each day as best you can and know you have lots..." + (show)
@mcmuck29

I understand the fear…move forward each day as best you can and know you have lots of support there to help.

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thank you both for replies- big day for my wife and i tomorrow-WISH EVERYONE THE BEST

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kissingrhino | @kissingrhino | Nov 9, 2022

Finally all my scans are finished, just waiting on results. Started protein bars to help maintain my weight. I wish I could feel more positive about this.

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2 replies
naomicanada | @naomicanada | Nov 10, 2022
In reply to @kissingrhino "Finally all my scans are finished, just waiting on results. Started protein bars to help maintain..." + (show)
@kissingrhino

Finally all my scans are finished, just waiting on results. Started protein bars to help maintain my weight. I wish I could feel more positive about this.

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You have to stay positive.
Stress and negativity doesn’t help. Try boosts and add protein powder to juices for exemple. It will be a journey but it will be ok.

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sjw6358 | @sjw6358 | Nov 10, 2022
In reply to @kissingrhino "Finally all my scans are finished, just waiting on results. Started protein bars to help maintain..." + (show)
@kissingrhino

Finally all my scans are finished, just waiting on results. Started protein bars to help maintain my weight. I wish I could feel more positive about this.

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i can understand your fear-i went for pet scan yesterday and my results at 430pm was that my esophageal cancer is at stage 2-so it did not spread from tumor to any other organs-i start chemo (once a week) on 11/23/2023 and i start radiation (5 times a week) on 11/21 FOR SIX WEEKS UNTIL 1/3/2023...2 to 4 weeks later i have a 7 hr surgery to remove tumor...oncologist is confident of a 50 to 70% chance of curing-THERE IS A PLAN-that makes the fear less overwhelming-my job is to stay active (walk, workout, ect), get 90 grams of protein a day, meditate, pray, REST......most of all believe that my oncology team will do their best to help me get through this--acceptance is the key, but that is a goal of mine-i am not there yet-BUT I AM DETERMINED ...

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2 replies
kissingrhino | @kissingrhino | Nov 10, 2022
In reply to @sjw6358 "i can understand your fear-i went for pet scan yesterday and my results at 430pm was..." + (show)
@sjw6358

i can understand your fear-i went for pet scan yesterday and my results at 430pm was that my esophageal cancer is at stage 2-so it did not spread from tumor to any other organs-i start chemo (once a week) on 11/23/2023 and i start radiation (5 times a week) on 11/21 FOR SIX WEEKS UNTIL 1/3/2023...2 to 4 weeks later i have a 7 hr surgery to remove tumor...oncologist is confident of a 50 to 70% chance of curing-THERE IS A PLAN-that makes the fear less overwhelming-my job is to stay active (walk, workout, ect), get 90 grams of protein a day, meditate, pray, REST......most of all believe that my oncology team will do their best to help me get through this--acceptance is the key, but that is a goal of mine-i am not there yet-BUT I AM DETERMINED ...

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I am praying for you.

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