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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Nov 12 9:01am | Replies (323)Comment receiving replies
Hi, my name is David,
I was diagnosed with Limbic Autoimmune encephalitis 3 years ago. I had multiple seizures and spent over 7 months in the hospital. I have lost almost all of my memory. Is there anyone out there that has been diagnosed with limbic AE that I could help support each other. I am also on 16 pills per day and have 5 specialists that I see. Loosing hope.
Replies to "Hi, my name is David, I was diagnosed with Limbic Autoimmune encephalitis 3 years ago. I..."
Welcome David, I know it has to be difficult when you are diagnosed with a rare condition and not finding any answers. There is an older discussion that you may want to read through to learn what others have shared.
-- What type of encephalitis? Autoimmune, limbic, or encephalopathy?
https://connect.mayoclinic.org/discussion/is-it-autoimmune-encephalitis-or-encephalitis/
You mentioned you have seen 5 specialists. Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?
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Hi David, I don’t think there is a connection to lichen sclerosis since the latter is a women’s disease. Hope you can find answers to your dilemma though. Good luck.