1. < Neuropathy

Lidocaine intravenous treatment - peripheral neuropathy

Posted by Kathypelkey @kathypelkey, Jan 11, 2012

I would like to correspond with others who have periferal neuropathy- my dr. In Albany, ny now wants to try intravenous-lidocaine treatment. The cause of my per. Neu. Is unknown, I.ve had a spinal tap which they say ruled out Lyme disease bacteria. I had Lyme disease 2 x,s. any support...thanks!!

Interested in more discussions like this? Go to the Neuropathy Support Group.

bcool123 | @bcool123 | Nov 7, 2022

On Connect’s 11/7/22 Daily Digest a comment was made about the med Vimpat that a Mayo neurologist was using for peripheral neuropathy with “a lot of success.” Any comment from other Connect members or volunteers? Or maybe the neurologist? Looking for relief for my intermittently burning/freezing feet. Appreciate any help,
Bcool in Colorado

REPLY
frattmaa | @frattmaa | Nov 7, 2022
In reply to @dsw "I was diagnosed with Neuropathy about 6 years ago, after a battery of testing and to..." + (show)
@dsw

I was diagnosed with Neuropathy about 6 years ago, after a battery of testing and to many doctors to mention. I have been on Gabapentin (Neurontin) all these years and it seems as if it has taken its toll. The side effects are wearing me down along with the chronic pain. So I am tiring the intravenous lidocaine next week. Also added Cymbalta to my daily routine along with high doses of b12-folic aid-R-Alpha Acid supplements. Ice packs and cold water soaks have really been the only thing that helped relieve pain temporarily. I hope to gain some insight from these discussions. Don’t know about anyone else but the hardest thing for me has been the lack of support from family and other people that don’t understand this disorder.

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People, friends and family don’t understand the disease because you look normal to them. If you had pain from a fractured arm you would get empathy and sympathy because it’s visible. Pain is not. Neither is the burning or shakes or muscle spasms.
I have a large family and they probably think it’s all in my head. So stick with the support group. We know what you’re going through. We’ve all been there or are there and can give ideas on how to help with pain and other symptoms.
My heart goes out to you because I’ve had this for 17 years. I also have autonomic Neuropathy. You want to talk about fun. This is also the disease that keep on giving. I had to have a pacemaker put in because the disease has attacked my heart, eyes, and kidneys. I have small fiber non length dependent neuropathy from the tip of my toes to the top of my head also. I’m also on Hospice because of my heart nerves dying. No longer can anything be done to help me, hence hospice. They have given me about 4-6 months. My family say I look fine. Good grief.

REPLY
bustrbrwn22 | @bustrbrwn22 | Nov 7, 2022

@fratrmaa. People can be so insensitive and unaware of anyone but themselves. I am so sorry you are going through this without real support from your family. Please reach out any time you need to.

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