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MGUS monitoring: What tests do you have done regularly?

Blood Cancers & Disorders | Last Active: Dec 23, 2022 | Replies (33)
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@gingerw

@teedlum Some people with MGUS do indeed have a bone marrow biopsy, but not everyone. Much of it depends on what labs tests are showing to your doctor as they continue to monitor you.

As you may already know, MGUS can go a long time with no noticeable symptoms. Many people never develop any other stages of disease. Others advance to smoldering myeloma. But that can be decades in doing so. Your medical team wants to keep an eye on you, and unless your lab results indicate there may be an issue, a bone marrow biopsy may not be done.

If you have other health concerns going on, your team will look at things from an overall perspective. Here is an article from Mayo Clinic about MGUS that may help you understand things a bit more clearly: https://www.mayoclinic.org/diseases-conditions/mgus/diagnosis-treatment/drc-20352367#:~:text=Bone%20marrow%20test.&text=Bone%20marrow%20analysis%20is%20generally,lesions%20or%20high%20calcium%20levels.

Do you have any other questions I can answer for you?
Ginger

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Replies to "@teedlum Some people with MGUS do indeed have a bone marrow biopsy, but not everyone. Much..."
teedlum | @teedlum | Nov 8, 2022

Ginger,
Thank you very much for your detailed reply and the link!
At this time I don’t have any other questions about MGUS.
Warmest wishes and 😊 voting day

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raye | @raye | Dec 8, 2022

EVUSHELD QUESTION WHETHER TO KEEP GETTING INJECTIONS: Not certain where I should jump in to the MGUS discussion.

I have IgM kappa MGUS and have had all five Modernas, the primary plus three boosters. (Absolutely no side effects from them.) However my body was tested for covid immunity and found to be immune compromised. Therefore I was given EVUSHELD six months ago and now due to repeat.

However, though my PCP advises getting second Evusheld, the covid virus variants have moved on. My hematologist, who had first said I was lucky to get E, now advises not to bother getting it. My friend with CLL is advised by a different hematologist not to get it also, and to wait and see what the FDA advises regarding Evusheld in a month or two.

My question to the MGUS and blood cancers family of unmet friends is: what are you hearing regarding continuing Evusheld?
Thanks for letting us know!

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