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MGUS: Please, let me know I not alone
Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)Comment receiving replies
I have had MGUS since about 2009, with no conversion to Multiple Myeloma. I had high calcium, but that proved to be due to high parathyroid hormone. Right now I have borderline anemia and a bunch of other stuff that may or may not be related.
I have had peripheral neuropathy, since about the same time period, but I also have diabetes. Neuropathy can be caused by several things, so it may be unrelated to MGUS. If your neuropathy is related to MGUS there would probably be other symptoms, and it probably would not be called MGUS any longer.
I have been around the bend with this diagnosis multiple times. I have searched the internet and worried unnecessarily. I am up for another round of blood work and bone marrow biopsy, just to stay up on things. Now I don't worry until something definite is found.
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Thank you .
Thanks! I was diagnosed with mgus last fall and I feel so much stress and depression wondering what the next step will be. I am relieved to her about someone who has not experienced a next step. Stay safe
All the pains and all the problems came from the moment of the diagnosis, there is an extensive psychological aspect here that affects the brain that transmits pains, currents and more
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@anng53 Welcome to Mayo Clinic Connect, Ann!
You're right that peripheral neuropathy can indeed be related to other conditions. Sometimes, it seems that if there is already a diagnosis of something that may relate to a condition, a doctor may lump that in with it. It can be much less work to do it like that, rather than checking to see what it may be really to. At least, that has been my experience in the past.
My neuropathy started about the same time I went from smoldering myeloma to multiple myeloma. It is still a situation I deal with, and will probably not be going away anytime soon. Dang it! For me, it affects my left leg from knee down, and my hands.
Ginger