← Return to Hodgkin Lymphoma was stable, now new activity

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@colleenyoung

Replies to "Great news, @hnipper1."

We are a year out from my last post, and the bendmustine has been slowly working to reduce the SUV and tumor size(s) with no spread and no new mets. This, until my last PET scan about two weeks ago when some activity was detected in my right lung. The activity was not specifically identified as a met, and I will get a CT scan with contrast next week to further characterize the finding. I have a productive cough that could be connected and my doctor thinks that pneumonia status post Covid-19 could be the culprit. More worrisome has been that my platelet count has dropped so low that yesterday's bendamustine was postponed until my platelets recover. I did receive my usual dose of nivolumab, however. I am also dealing with a low hemoglobin and HCT, as well as low RBC. Taking iron tablets has not raised the indices. Hoping that my situation improves so I can get back on treatments that were working! The plan is to consult Mayo heme-onc with the results of the CT scan and my other labs to see if we can discern a path forward. Overall I feel no different than last year when we added bendamustine. We had to work through the correct infusion rate of bendamustine and as well, the correct dose of steroids and fluids to avoid the side reaction of dizziness and danger of falls after the infusion! Updates as warranted.....