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MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

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@neskue3712

You are not alone! I have been diagnosed with Mgus for about 2 years. I also have peripheral neuropathy which one doctor said was associated with Mgus . I would like to know if anyone else has a neuropathy associated with Mgus diagnosis .

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Replies to "You are not alone! I have been diagnosed with Mgus for about 2 years. I also..."

I have had MGUS since about 2009, with no conversion to Multiple Myeloma. I had high calcium, but that proved to be due to high parathyroid hormone. Right now I have borderline anemia and a bunch of other stuff that may or may not be related.
I have had peripheral neuropathy, since about the same time period, but I also have diabetes. Neuropathy can be caused by several things, so it may be unrelated to MGUS. If your neuropathy is related to MGUS there would probably be other symptoms, and it probably would not be called MGUS any longer.
I have been around the bend with this diagnosis multiple times. I have searched the internet and worried unnecessarily. I am up for another round of blood work and bone marrow biopsy, just to stay up on things. Now I don't worry until something definite is found.

Hi Neskue,
Yes I have peripheral neuropathy in my feet. I feel I may be getting it in my wrists. Although, maybe from my neck…jeesh…lol

I was diagnosed with IgG MGUS prompted by my PN. After extensive blood and EMG tests, both the Hematologist and Neurologies don’t suspect the PN to be related to my MGUS. PN is more commonly associated with IgM MGUS than IgG or IgA as you can find in the literature.