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Caregivers: Dementia | Last Active: Nov 7, 2022 | Replies (9)

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@rubies21

Kaiser offers a memory care program, and we have a follow up appointment in 6 months. We both liked the doctor, which always helps. It seems like he's losing abilities very quickly. Is that normal? When we lost power a couple months ago, he reset all the clocks. This time, he couldn't remember how to set them back an hour when we switched from daylight savings time.

Thank you for following up with me.

Robin

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Replies to "Kaiser offers a memory care program, and we have a follow up appointment in 6 months...."

Hi @rubies21, my husband was diagnosed with Alzheimer's Disease in 2019 after an MRI of his brain and neuropsychological testing, but I noticed changes in him in 2017. He's given up most responsibilities, driving, managing our finances, home maintenance. He still does the dishes, though, and I think it's good for him to do as many chores as he can while he still can. Even turning on the tv and switching channels is beyond him now. Somedays he remembers people, sometimes he doesn't. He wants to spend a lot of time in bed. He's had a couple of bad days, but most of the time he's on a pretty even keel. He broke his hip in January, and it was on his mind for many months, but now he's forgotten it. I try to keep him as active as possible, eating well, etc. He's resistant to exercise, but when I remind him why he should do it, so his bones get stronger, and don't break again, he'll comply. So I need to remind him all the time because he forgets. My father had "multiinfarct dementia" and his symptoms were different. Many of us caregivers have different and similar experiences with our loved ones because these diseases manifest themselves in so many different ways. Try to stay strong and take care of yourself. I wish you the best.

Good morning and hello, @rubies21 Nice to hear from you, Robin. Sorry to read of this new challenge/change for your husband. I think times of changes and non-change plateaus vary a lot!

While I know every patient and their reactions/responses to their dementia are different, I know with my wife and MIL, their changes often occurred "overnight" while some indeed did just that. My wife's neurooncologist told us that the brain tries to "rewire" its damaged synaptic connections during sleep and that was why we'd often see changes from nighttime to mornings. Things would change like food an aromas she previously loved, but suddenly disliked, and a myriad of other daily items. Time became a tough concept at one point, too.

For my wife, she lived by her routine -- day in and day out, day after day, so the annual changes of our clocks became a significant problem for her to understand as to if it would have any6 effect on her routine (times for meds, etc.). So I took to never mentioning the change to her and would do it all on the QT. Later, the differences between AM and PM and had to get a couple clocks that told military time so she wasn't calling people at 2:00 am thinking it was 2:00 pm.

I hope the sun is shining where you are today!

Strength, Courage, & Peace