← Return to Crohn's Disease isn't on the ease: What treatments work?

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@rjmobe

Hi, I’m new here. I was diagnosed with Crohns on 2005. I started on mesalamine and that worked by itself for a few years until my first pregnancy in 2007 when my Crohns got much worse. Over the next several years I tried several different treatments along with mesalamine, humira - failed; Cimzia- worked for Crohns but got frequent uti’s and pneumonia several times; stilera- failed. I’ve been on entyvio since 2018. My insurance changed a few years ago and mesalamine was no longer covered and I had to stop it. Tried a few different variations but they didn’t work. In 2020 several polyps were found in my colon and I had a total colectomy with ileorectal anastomosis. After surgery I continued on imuran and entyvio monthly and went 1.5 years without a flair. I had a flair in June and another started a few weeks ago. I’ve been on prednisone for 2 weeks and I’m still having pain. What else can I do. I’m so discouraged that I keep having flairs after all I’ve been through. What other treatment should I look into? I’d like some ideas to talk to my gi about. Thanks.

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Replies to "Hi, I’m new here. I was diagnosed with Crohns on 2005. I started on mesalamine and..."

@rjmobe, I wanted to check in to see how you are doing. Fellow Crohn's disease members like @karee @carolyne @sage50 @nanajoy @mothermary1 @brenda9417 @dg0797 @suetex and others can share their experiences and treatment options that worked for them.

Did your GI start you on new treatment? How is it going?

You have really been through the ringer! As I mentioned in my other post, Low Dose Naltrexone has really changed my life. Unfortunately, American docs haven't really bought into it yet. And the organization that gives protocols for GI docs are just now giving it a serious look. It's big in Britain and the LDN Research group have put out a lot on it. You can find them on the web. I had to go to my rheumatologist for it and it is compounded. But few, if any side effects. Give it a look/see and start asking your doctors. Best of luck.