1. < Esophageal Cancer

Just diagnosed with gastroesophageal adenocarcinoma. Very scared

Posted by skwwatkins @skwwatkins, Aug 5, 2021

My husband was just diagnosed with gastroesophageal adenocarcinoma. We are very scared. Second opinion. And has anyone had this.

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sjw6358 | @sjw6358 | Nov 5, 2022

On November 8 I consult with surgeon. Nov 9 I have pet scan at 930, mapping at 2, then go over results pet scan at 430...kinda anxious today

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1 reply
kissingrhino | @kissingrhino | Nov 5, 2022

I believe I am getting a handle on posting. If I missed anyone I am sorry. Right now does anyone have ideas on keeping weight on?

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kissingrhino | @kissingrhino | Nov 5, 2022
In reply to @sjw6358 "On November 8 I consult with surgeon. Nov 9 I have pet scan at 930, mapping..." + (show)
@sjw6358

On November 8 I consult with surgeon. Nov 9 I have pet scan at 930, mapping at 2, then go over results pet scan at 430...kinda anxious today

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I wish you the best of luck, I am praying for you.

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esop | @esop | Nov 5, 2022

Hello
I have stage 4 esop. cancer went with Flofox and Keytruda then developed Type 1 diabetes this summer due to this along with a drop right foot. Saw the neck surgeon Friday and he and my Ocon. want me to remove esop. and pull up stomach. Has anyone had this surgery?

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1 reply
socalkelly | @socalkelly | Nov 6, 2022
In reply to @esop "Hello I have stage 4 esop. cancer went with Flofox and Keytruda then developed Type 1..." + (show)
@esop

Hello
I have stage 4 esop. cancer went with Flofox and Keytruda then developed Type 1 diabetes this summer due to this along with a drop right foot. Saw the neck surgeon Friday and he and my Ocon. want me to remove esop. and pull up stomach. Has anyone had this surgery?

Jump to this post

My husband had an esophagectomy at the end of July this year. He’s still doing enteral feedings, but he’s able to eat small portions by mouth. Recovery is long, exercise and keeping a positive /fighting attitude is important.

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mcmuck29 | @mcmuck29 | Nov 6, 2022

My husband had Stage 3 in October of last year. He had 5 treatments of Chemo and 26 treatments of proton radiation from November to January after which he had a espohagectomy in March. The recovery for him was long and he had a setback or two, but Mayo staff was helping him every step of the process. He is now eating smaller amounts of food but normal foods (with some exceptions). He is working now to build up his iron levels and exercise more to build his endurance.

We send you our prayers and encourage you to stay positive and rely on the Mayo staff and family to help support you through this process.

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1 reply
naomicanada | @naomicanada | Nov 7, 2022
In reply to @mcmuck29 "My husband had Stage 3 in October of last year. He had 5 treatments of Chemo..." + (show)
@mcmuck29

My husband had Stage 3 in October of last year. He had 5 treatments of Chemo and 26 treatments of proton radiation from November to January after which he had a espohagectomy in March. The recovery for him was long and he had a setback or two, but Mayo staff was helping him every step of the process. He is now eating smaller amounts of food but normal foods (with some exceptions). He is working now to build up his iron levels and exercise more to build his endurance.

We send you our prayers and encourage you to stay positive and rely on the Mayo staff and family to help support you through this process.

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My mom had the same.
Did they propose immunotherapy to prevent recurrence ? If not … why?
Naomi

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kissingrhino | @kissingrhino | Nov 7, 2022

I had my port in today, 2 more scans Wednesday. Then Oncologist on Monday to talk about treatment. I start chemo on the 28th, having a rough time dealing with whole thing.

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mcmuck29 | @mcmuck29 | Nov 7, 2022
In reply to @naomicanada "My mom had the same. Did they propose immunotherapy to prevent recurrence ? If not …..." + (show)
@naomicanada

My mom had the same.
Did they propose immunotherapy to prevent recurrence ? If not … why?
Naomi

Jump to this post

They did but unfortunately Doug had a “leak” and was rehospitalized and then developed blood clots so he missed the window of opportunity for the immunotherapy. If the timing would have been better our oncologist was supporting it for Doug.

How is your mother progressing?

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