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Post Transplant - Core numbness and weakness

Transplants | Last Active: Oct 5, 2023 | Replies (37)

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@keithjp77

I am going on 4 months post transplant for my liver. I just stumbled across this list and I am reading this sitting at my dining table crying. While I’m surrounded by love ones who constantly encourage me, it is somehow a comforting feeling to hear your stories and know I am not alone. You all are writing as if you have access to my brain. THANK YOU!

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Replies to "I am going on 4 months post transplant for my liver. I just stumbled across this..."

@keithjp77 I want to extend my hand in a virtual handshake and Welcome to Connect. I know that I speak for everyone on Connect when I say that you are not alone in your feelings and emotions at discovering that you are in the company of others who are like you, who have walked a transplant journey like you have done. I'm happy that you have joined into this conversation and I look forward to hearing your transplant story when you are ready.

Congratulations on your recent liver transplant! How is your recovery and return to a normal life progressing for you?

@keithjp77
This journey can be a rollercoaster of emotions and thoughts that we have only some control over. Thank goodness you have loved ones around you. Let them read these posts as well. You are definitely not alone!
Stay well.
Ellen

Thank you. I am glad that sharing ghe journey helps you and others. I am now 6.5 months post transplant. My tremors lessened when the tac amount was reduced and when cellcept was discontinued. Physical therapy (PT) helped with balance, strength and agility. I still would have times when the tremors wreaked havoc during my PT sessions and that helped me with acceptance.
Last week during a ballroom dance lesson I had 10 minutes of tremors and muscled my way through it to have the last half hour of dancing go smoothly.
I have learned caffeine can agitate the tremors; a good night sleep can decrease the tremors and; napping as soon as morning tremors kick in saves me the more dramatic shakes. I either tuck my hands under me or lace my fingers and test hands on my chest to help me nap.
I hope that helps you.
Barbara

after 30 month of my liver transplant I still fighting remember this is no the same live we have before Liver Transplant. Be Positive and faith in God he always help you. I still have faith I will live longer even though my new liver start with new Cirrosis, Please fight and then you will cross the line to your new life