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Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
Hi @caretakermom 😊
What do you think of the idea of asking your transplant nurse for a referral so you and your husband can have a video consultation with an Infectious Disease doc regarding these recurring CMV infections and frightening low WBC numbers during CMV treatment?
Or what do you think of the idea of sending a message through the patient portal to your Infectious disease doctor? (Normally if you have met with a Mayo ID doctor in the past, you are able to portal them a detailed message and question).
Have you and your husband had appointments with an Infectious Disease doctor after the transplant?
P.S. Also, I wanted to mention the idea of asking your primary doctor to request a Cologuard at home test. It's not the perfect "gold standard" colonoscopy test, but highly effective at identifying pre-cancer and cancer for patients that are not high risk. The test was developed by a Mayo doctor! It may give you some peace of mind and it's very easy to do at home. Nothing invasive. Is the colonoscopy for hubby just a routine screening or is there an active issue that is a concern?
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@hello1234,
The colonoscopy is routine checkup, no major issues but the team wants him to have regular check up especially post transplant. His 3 year is due this December, though they may want him to have one annually. The CMV is from the donor kidney, mismatched kidney with donor positive and patient negative. So the CMV was definitely expected by the team, just didn't expect it to be so persistent. At Mayo Az, CMV(resulting from kidney transplant) is normally treated and monitored by the kidney transplant team and they are the ones who will adjust the immuno suppressant drugs. We have a 8-month checkup coming up but it will be a virtual appointment.
I have done the Cologuard before, it's definitely an option if a colonoscopy is not possible. We will discuss with team at appointment. Thank you for your inputs!