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Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
Hi @caretakermom 😊
I am happy to hear that hubby's dental work was taken care of, but I am sad to hear that the CMV returned again. Is the CMV viral load very slight? Does the test result say >200 or did it show an actual number?
I have learned from my recent covid experience that infection can lower your WBC. So I am starting to wonder if your hubby's low WBC is being caused by the CMV infection itself. Is that possible?
Also, was his Myfortic dosage increased and then he got it again or was he still on the reduced dosage of Myfortic and the CMV reappeared?
Replies to "Hi @caretakermom 😊 I am happy to hear that hubby's dental work was taken care of,..."
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Hi @hello1234,
Currently CMV load = 1176, <200 is considered undetected and WBC=5.2. The CMV infection didn't show up until this latest lab, at which point WBC has already recovered. Previously, WBC was low(< 1.0) because both Valcyte and Myfortic were the culprits. WBC recovered after both Valcyte and Myfortic were discontinued.
Myfortic is still on hold, provider wants him to get back on Valcyte and continue with prednisone for now. I don't think they will add back Myfortic at the moment because it causes drop in WBC. I'm not sure if or when my hubby will resolve CMV. It is very persistent and feels like we're just going in circles. The team is expecting his WBC to tank eventually, that is one of the side effects of Valcyte. My hubby is ready to try the new CMV drug but the provider is reluctant to prescribe it. Just very discouraging. We and the team thought he finally defeated the CMV so it was extremely disappointing to see the positive result. The provider/nurse didn't expect a resurgent, esp when he has converted with CMV antibodies!! At this point I don't know what the provider's plan is to defeat this!