← Return to CLL - newly diagnosed

Discussion

CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Aug 2 11:42am | Replies (117)

Comment receiving replies
@alanahawaii

Good morning. Brand new to this forum. Was diagnosed with CLL a year and a half ago at age 57. Total shock as I have been very healthy all my life. I'm very fortunate to still be very healthy, considering! I find myself still in denial at times, as I have no symptoms that I am aware of. I have one comment and one question...
My oldest son was diagnosed with ALL at the age of 3, and is now a healthy, wonderful 31 year old. I am grateful beyond words for that miracle. I also just learned that my Dad has had CLL since he was 58 and he is now 80! Also heard over the years that my Great Grandfather had leukemia, but that was many years ago, so not sure what kind. My maternal Grandfather also died of leukemia, but again, not sure what form. Anyone else have a family history of CLL or other forms of leukemia? I may take part in a study at Dana Farber, but have not shared my diagnosis with my parents as I don't want to worry them if there is no need to.
My question is this: has anyone's doctor warned them about being very careful Not to get Covid? I have had 5 shots, try and stay out of crowds, wear a mask in public always since the start of the pandemic. Of course I don't want to get Covid and have been lucky that no one in my immediate family has. But I was wondering if it is necessary to constantly wear a mask around everyone outside of my immediate family and a few close friends, if going out to eat is off limits, if wearing a mask around anyone I know that has Not been vaccinated? I don't mean to whine, but being the only one wearing a mask (or so it seems!) and avoiding many of the things I used to do (or people that are not vaccinated) out of caution is on my mind frequently. Anyone have any thoughts?
Thank you.

Jump to this post


Replies to "Good morning. Brand new to this forum. Was diagnosed with CLL a year and a half..."

Just to let you know I've had Cll for about seven years now and have been quite healthy since. I am currently on what the doctor calls watch and wait. Last year I came down with Covid and had what seemed like a nasty case of the flu. After about two weeks I recovered with no side effects. Maybe I was just lucky, but it seems if you take care of your health and caught Covid you have a good chance of recovery. By the way I had been vaccinated three times by that point and still caught it. Just live your life as you want and don't let this drag you down. Most of the time I forget I even have it. I see my doctor once a year and he says it will be many more before I need any treatment. Good luck to you

I would strongly recommend wearing wrap around glasses: sun glasses or plain, to prevent any virus entering your body via this vector. In addition, continue using a mask; covering the nose and mouth will strengthen your protection and of course regular vaccinations. All the best M