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Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
Hi @jp1023 😊
Yes, I believe that BK virus is more of a problem for kidney transplant patients. I haven't seen another organ transplant patient speak about getting BK virus. I have seen liver, heart and kidney transplant patients speak about having and being treated for CMV. Me too!
When you had your experience with rejection in April, did you have any symptoms or was it found during a protocol biopsy? How did they treat it? Did you have an increase in your immune suppression and was it resolved pretty quickly?
This journey is definitely a learning experience. I agree with you!
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I had no symptoms per se, but I did feel more tired than usual looking back. My my ALT and AST were 800/1000!!!! They did a biopsy and then steroid treatment in the hospital. Then another biopsy. They put me on Valcyte and another med (I’d have to look it up) until the levels came down- which was about 2 months. That’s when the CMV hit. It went away for about 3 months and now it’s back. Waiting to hear on the latest bloodwork. They have not changed my Tacro in awhile. I’m taking 1.5 am and pm. My levels are around 6. I think they are keeping it low so my kidneys don’t get worse? I haven’t asked.