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Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
Currently I’m taking 360mg of mycophenolic acid twice a day with my tacro. I had been taking valcyte after my rejection in April, but then got the CMV after the fact in June- so no more valcyte and back to the mycophenalate. That made my stomach a mess so that’s why I’m taking the acid. I was scheduled to go off if it, but the CMV came back. Just had more bloodwork done and waiting for results to see the next step.
You have BK virus? I’m not sure I’ve heard of that. Is that related to just kidneys or something else?
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Today 11/3/2022 my doctor decreased my tacrolimus 0.5 mg to once a day and said my labs to follow my level for it I will not need to have anymore because he is going to be taking me off, I'm concern, I know my level is going to be low, however most of the medications I am on can kill me. He not going to do bone marrow bx. any time soon last bx. did not detect any cancer thank "FATHERGOD". Has anyone stopped immunosuppression medication who had stem cell- transplant how did that work out for you?
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Hi @jp1023 😊
Yes, I believe that BK virus is more of a problem for kidney transplant patients. I haven't seen another organ transplant patient speak about getting BK virus. I have seen liver, heart and kidney transplant patients speak about having and being treated for CMV. Me too!
When you had your experience with rejection in April, did you have any symptoms or was it found during a protocol biopsy? How did they treat it? Did you have an increase in your immune suppression and was it resolved pretty quickly?
This journey is definitely a learning experience. I agree with you!