Just diagnosed with gastroesophageal adenocarcinoma. Very scared

Posted by skwwatkins @skwwatkins, Aug 5, 2021

My husband was just diagnosed with gastroesophageal adenocarcinoma. We are very scared. Second opinion. And has anyone had this.

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@colleenyoung

@kissingrhino, getting a diagnosis of esophageal cancer is hard under any circumstances. Hearing this over the phone with no follow-up is not a way any patient should get the news about cancer.

I've moved your post to this existing discussion:
- Just diagnosed with gastroesophageal adenocarcinoma. Very scared https://connect.mayoclinic.org/discussion/adenocarcinoma/

I did this so you could read previous posts and easily connect with other members like @survivorsuz @puprluvr @karly @davevb @margaretdv @lori57216 @sjw6358 @ajfromchicago, who have experience with esophageal cancer and have walked this path before you and can guide and support you.

I bet you have a lot of questions. Please post them. I also have a few question for you. Do you know if you will be getting surgery? What are the next steps for you? Have you considered getting a second opinion?

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Thank you

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In reply to @kissingrhino "Thank you" + (show)
@kissingrhino

I was diagnosed with stage 4 esophageal cancer in April. Was admitted to the hospital and began Folfox chemotherapy regimen. I have completed around 14 rounds of chemo (every two weeks) and am able to eat regular meals, walk four mikes a day, and do some light exercise. A far cry from the initial status, when I could not eat and lost 30 pounds. Get a good oncologist, follow the treatment protocol, and do what you can to help the treatments do their job. Eat small meals, stay hydrated, and try to exercise. Feel free to reach out with any questions; I’m rooting for you!

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@colleenyoung

@kissingrhino, getting a diagnosis of esophageal cancer is hard under any circumstances. Hearing this over the phone with no follow-up is not a way any patient should get the news about cancer.

I've moved your post to this existing discussion:
- Just diagnosed with gastroesophageal adenocarcinoma. Very scared https://connect.mayoclinic.org/discussion/adenocarcinoma/

I did this so you could read previous posts and easily connect with other members like @survivorsuz @puprluvr @karly @davevb @margaretdv @lori57216 @sjw6358 @ajfromchicago, who have experience with esophageal cancer and have walked this path before you and can guide and support you.

I bet you have a lot of questions. Please post them. I also have a few question for you. Do you know if you will be getting surgery? What are the next steps for you? Have you considered getting a second opinion?

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So far I have only heard from the nurse. Her comment was "The biopsy was not obvious, the lab had to cut it up & dye it". I do not know what that means.

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@kissingrhino

So far I have only heard from the nurse. Her comment was "The biopsy was not obvious, the lab had to cut it up & dye it". I do not know what that means.

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The biopsy extracted samples of the suspected tissues. These need to be sliced, dyed, and put on slides so they can be evaluated to determine whether the cells are cancerous. Hoping for the best for you!

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I have it currently find out as much as you can about it will help in decision making.Remember God will get you thru this seek him out.He has blessed me with no side effects from either chemo or radiation will be praying for you.Rik

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I finally seen the biopsy today. Surgeon was his cheerful self, esophagus was normal except for mass. I have 5 1cm lesions on my liver, which makes stage 4. So far only in esophagus & liver, Oncologist is optimistic the liver can be dealt with.

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I would like to thank the people here for helping me understand what is going on.

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@kissingrhino

I finally seen the biopsy today. Surgeon was his cheerful self, esophagus was normal except for mass. I have 5 1cm lesions on my liver, which makes stage 4. So far only in esophagus & liver, Oncologist is optimistic the liver can be dealt with.

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Hello,
How is the liver heal ? Chemo? Immuno?
My mom was stage3 - the surgery removed everything but immunotherapy for a year to prevent recurrence.
Thank you

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@naomicanada

Hello,
How is the liver heal ? Chemo? Immuno?
My mom was stage3 - the surgery removed everything but immunotherapy for a year to prevent recurrence.
Thank you

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The Oncologist is starting with chemo to shrink the lesions. When their small enough she plans on 1 biopsy, then "zapping" the rest to remove them from the liver.

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@davevb

I was diagnosed with esophageal adenocarcinoma I February of this year. 2 and a half weeks ago I finished last chemo and radiation. I had several side effects the worst of which was spasms in my esophagus(very painful). Others were neuropathy, fatigue, loss of appetite, eating and drinking especially are painful. I am starting to recover from them thankfully, the spasms in particular. Good old Tylenol has been my most effective med to combat pain. Also Lidocaine, cough drops, vitamins and minerals. Going to have my esophagus taken out August 25. The last ct/pet scan showed no cancer which doesn’t necessarily mean there couldn’t be a little hiding somewhere because the scan does not pick up very small infections of cancer. Nevertheless the cancer is 99% gone at this point. I am trusting the Lord that the operation will go well and that the cancer is gone for good.

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Hello Dave - how are you?
I would like to know if you were stage 2 or 3 ?
Does immuno was proposed.
Thank you so much
Naomi

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