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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)
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@kristiann1123

My cousin (31 year old female) has had a very low blood platelet count for over 2 months now. She got down to 6k and was hospitalized for 3 days and they are not telling her anything other than it could be chronic or a one time thing. She has taken steroids to boost her levels back up but the moment she stopped, they dropped back down to 26k within a matter of a few days. She has had numerous labs and testing and they aren't fixing her problem and seem to not even have an inkling as to what is really going on with her. Any thoughts or ideas on what we should do next?

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Replies to "My cousin (31 year old female) has had a very low blood platelet count for over..."
Colleen Young, Connect Director | @colleenyoung | Nov 3, 2022

Welcome, @kristiann1123. I moved your message to this existing discussion that @rockitman recently started.
- Low Platelets: Diagnosis to be confirmed: https://connect.mayoclinic.org/discussion/low-platelets-1/

I did this so you can read the previous posts and connect with members like Rockitman, @loribmt @hlmcneely @elenarey77 @lulujuice @emcdanie2006

Kristian, has your cousin considered getting a second opinion to help find the underlying cause?

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emcdanie2006 | @emcdanie2006 | Nov 4, 2022

I highly advise a 2nd opinion. Contact an specialist immediately! Have them run an AdamsT13 blood test, it will surely point to iTTP. I was in a coma for 4 days (blood loss) doctors ran every test imaginable- finnaly, an hematologist saw that I had no platelets and started plasma exchange.

Wishing you the best, keep us updated. “praying”

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