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Cryoglobulinemia: Want to connect

Blood Cancers & Disorders | Last Active: Jan 9 10:02am | Replies (17)

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@loribmt

Hi @zebra2022 Cryoglobulinemia is a new word for me. So I did some quick research to see what is involved with this diagnosis.

“Cryoglobulins are proteins found in the blood that precipitate (clump together) in the cold and may cause inflammation and organ damage. However, these proteins can also be present in low levels in the blood without causing any symptoms. When there are symptoms due to the cryoglobulins, the disease (usually a special rash) is called "cryoglobulinemia."
https://my.clevelandclinic.org/health/diseases/13204-cryoglobulinemia

Trying to keep your body at a constant 98,6 has to be challenging. Especially in cooler climates! What are your symptoms?

There are a couple of conversations in our forum with other members who have cryoglobulinemia but I don’t see any recent posts from these members.
Here are links to the discussions:

Cryoglobulinemia: Want to connect
https://connect.mayoclinic.org/discussion/cryoglobenemia/

Cryoglobulinemia not caused by hepatitis or lymphoma?
https://connect.mayoclinic.org/discussion/cryoglobulinemia-not-caused-by-hepatitis-or-lymphoma/

What doctor are you seeing for the Cryoglobulinemia? Have you been prescribed any medicaions? If you’re not getting any answers from your current doctor, have you considered a second opinion?

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Replies to "Hi @zebra2022 Cryoglobulinemia is a new word for me. So I did some quick research to..."

Currently I am seeing a nephrologist for the kidneys. I also have my rheumatologist, oncologist/hemotologist, primarily. but I also have G.I. specialist, ENT, eye doctor, and primary. Mainly because I want all my doctors on the same page as to my diagnosis. I've been running into medical issues with everything since my diagnosis. I don't have hepatitis or lymphoma.
I was told it stemmed from my sjogrens.