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Living with AYA cancer: Introduce yourself and meet others

Adolescent & Young Adult (AYA) Cancer | Last Active: Nov 5, 2022 | Replies (35)
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@avalon11

Hi I'm Blake, male and 29. It all started when I was just walking and I there was on right side of my hip a big snap follow by the worst pain I've ever experienced it was off the charts to the point that my heart rate was high enough to be of concern so the paramedics were having me do breathing exercises to try and relax before they started me on the drugs. So on the right side of my hip where the femur bone connects to the hip broke clean off, they did a partial hip replacement. So I was in the hospital for three weeks and the last days I was there I was working with physical therapy. I was diagnosed with non-hodgkins lymphoma It was a long recovery at home, I think it was a month before I was able to walk on my own.

Then at the end of September 2021 I started R-CHOP chemo and radiation and completed it in January 2022. I'm due for a bone scan in a couple of months, but I haven't had any bone pain so I expect the result to be good.

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Replies to "Hi I'm Blake, male and 29. It all started when I was just walking and I..."
Colleen Young, Connect Director | @colleenyoung | Nov 3, 2022

Hi Blake and welcome. That sounds excrutiatingly painful. I'm tagging @annalise @jessica0, who also have experience with lymphoma, albeit Hodgkin's lymphoma.

It's been a long haul for you. I sense optimism in your words. Are you working or at school, or was that all put on hold while you focus on recovery?

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annalise | @annalise | Nov 3, 2022

Hello Blake! That sounds so painful! I hope that your scans come back well for you. I'm looking to get my next scan at the turn of the year once the new insurance kicks in. I took time off both times I had cancer, but just graduated my masters program and am in the field!

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jessica0 | @jessica0 | Nov 4, 2022

Wow Blake, you must have been so scared and all the uncertainty to follow sounds so overwhelming but I’m glad to hear that you’re feeling better and walking again. That’s quite a way for you to find out you have cancer too. I’m sure your survival mode kicked into high gear but great job on handling the situation you got dealt and overcoming your diagnosis and your partial hip replacement. I hope your upcoming scan come back with good news.

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