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Anyone experience multiple CMV resurgences post kidney transplant?
Transplants | Last Active: Dec 29, 2022 | Replies (107)Comment receiving replies
@jp1023 Good Morning and Welcome to Connect.
I am a transplant recipient. I received my simultaneous liver and kidney transplant in 2009 at Mayo Rochester following a rapid and complicated journey. I have been taking Mycophenolate (Cellcept) and Tacrolimus for 13 years without any issues. I remember that I did take omeprazole in the beginning, but don't need it anymore. So it might be possible for your 'struggles' to resolve if you are a newly transplanted patient. Each patient is a unique entity with varying medical backgrounds and needs.
From your post, I am assuming that your struggles are possible related to your medications. Is that correct?
How long ago did you receive your liver transplant? Have you been in contact with your transplant team?
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Yes, I speak with my transplant team at least weekly. My transplant was 3 years ago. I have struggled to maintain weight and have also become a diabetic. I am a CMV mismatch and have A1AT. We keep working on getting the medication correct as it changes almost monthly. They stay on top of it and are a great asset to have. I feel very lucky to have such a great team! It’s frustrating to have to battle the diabetes while trying to get the other stuff under control as well. The diabetes is becoming more of a chore than the transplant is.