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I am looking for others diagnosed with microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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lighthouseceliac | @lighthouseceliac | Oct 21, 2022

What are concerns or side effects with Cholestyramine.

REPLY
cathy5920 | @cathy5920 | Oct 22, 2022

Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem to have both IBS and MC. Awful combo. I tried colestyramine, but it didn't make much difference in my constant runs. The steroid, Bud...helped firm my stools a tad, but the side effects were intolerable. If I eat anything with fiber, I get pain and bloating to add to my five to seven daily watery stools. So no fruits and vegetables. And I used to be a vegan! Thank goodness I am not gluten or lactose intolerant. I consume lots of dairy and lots of white stuff. I was trying to take two Imodium twice a day, which helped lessen the frequency of my runs, but my heart started going into arrhythmia. I spent 12 awful 0years with atrial fib, and I don't want to go there again. So gulping down Pepto-Bismol seems to be the only thing that slows things down a bit. Anyone else find help for these constant watery stools?

REPLY
3 replies
carolyne | @carolyne | Oct 23, 2022
In reply to @cathy5920 "Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem..." + (show)
@cathy5920

Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem to have both IBS and MC. Awful combo. I tried colestyramine, but it didn't make much difference in my constant runs. The steroid, Bud...helped firm my stools a tad, but the side effects were intolerable. If I eat anything with fiber, I get pain and bloating to add to my five to seven daily watery stools. So no fruits and vegetables. And I used to be a vegan! Thank goodness I am not gluten or lactose intolerant. I consume lots of dairy and lots of white stuff. I was trying to take two Imodium twice a day, which helped lessen the frequency of my runs, but my heart started going into arrhythmia. I spent 12 awful 0years with atrial fib, and I don't want to go there again. So gulping down Pepto-Bismol seems to be the only thing that slows things down a bit. Anyone else find help for these constant watery stools?

Jump to this post

Hi Cathy,
Sorry to hear you’re suffering with MC. I have collagenous colitis which is similar to MC.
I was prescribed all the traditional meds, none controlled my symptoms. I am now on Entyvio infusions every 8 weeks and I feel much better with no symptoms or side affects, just can’t gain any weight.
I hope this information helps.
I can totally emphasize with what you’re going through.

REPLY
kitty2 | @kitty2 | Oct 23, 2022
In reply to @cathy5920 "Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem..." + (show)
@cathy5920

Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem to have both IBS and MC. Awful combo. I tried colestyramine, but it didn't make much difference in my constant runs. The steroid, Bud...helped firm my stools a tad, but the side effects were intolerable. If I eat anything with fiber, I get pain and bloating to add to my five to seven daily watery stools. So no fruits and vegetables. And I used to be a vegan! Thank goodness I am not gluten or lactose intolerant. I consume lots of dairy and lots of white stuff. I was trying to take two Imodium twice a day, which helped lessen the frequency of my runs, but my heart started going into arrhythmia. I spent 12 awful 0years with atrial fib, and I don't want to go there again. So gulping down Pepto-Bismol seems to be the only thing that slows things down a bit. Anyone else find help for these constant watery stools?

Jump to this post

Hi..I had a lot of problems with immodium and mesalamine products..I passed out at work and made my colitis and bleeding much worse. My previous physician told me to take 2 immodium at a time four times a day..lots of side effects. Even the pharmacists at walgreens were concerned about the high dose for my age and size. I am seventy. I am off of those drugs and doing somewhat better. Hope you start feeling better. This is a journey, and not a pleasant one. Sincerely, Kitty2

REPLY
levina | @levina | Oct 23, 2022
In reply to @cathy5920 "Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem..." + (show)
@cathy5920

Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem to have both IBS and MC. Awful combo. I tried colestyramine, but it didn't make much difference in my constant runs. The steroid, Bud...helped firm my stools a tad, but the side effects were intolerable. If I eat anything with fiber, I get pain and bloating to add to my five to seven daily watery stools. So no fruits and vegetables. And I used to be a vegan! Thank goodness I am not gluten or lactose intolerant. I consume lots of dairy and lots of white stuff. I was trying to take two Imodium twice a day, which helped lessen the frequency of my runs, but my heart started going into arrhythmia. I spent 12 awful 0years with atrial fib, and I don't want to go there again. So gulping down Pepto-Bismol seems to be the only thing that slows things down a bit. Anyone else find help for these constant watery stools?

Jump to this post

I am newly diagnosed with MC . I have been keeping a food journal.It is all trial and error.
I thought of seeing a nutritionist, but it’s so expensive. I have been googling all my foods. I also take Budesonide . It has helped,but not something I want to take long term because of my A- fib. I’m seeing my Dr Tuesday. I will pass along any new information I get from her. Good luck.

REPLY
luannr | @luannr | Oct 25, 2022

I have IBS-D and MC. It is trial and error! Yes, keep a good journal. I was on a FODMAP diet under a nutritionist. I lost weight, did not feel well and still had bowel problems. Since then I have severely restricted fruits to bananas and a little pineapple. I eat no fried foods and if I do I have a reaction. I am on cholestyramine 4 gram once a day and use Imodium if needed. Keep hydrated! Be vigilant to what you eat.

REPLY
1 reply
rita | @ritabtripp | Oct 30, 2022

Has anyone had a stem cell transplant to treat your ulcerative colitis? I’m considering it but would love to hear if it’s been helpful

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cathy5920 | @cathy5920 | Oct 30, 2022
In reply to @luannr "I have IBS-D and MC. It is trial and error! Yes, keep a good journal. I..." + (show)
@luannr

I have IBS-D and MC. It is trial and error! Yes, keep a good journal. I was on a FODMAP diet under a nutritionist. I lost weight, did not feel well and still had bowel problems. Since then I have severely restricted fruits to bananas and a little pineapple. I eat no fried foods and if I do I have a reaction. I am on cholestyramine 4 gram once a day and use Imodium if needed. Keep hydrated! Be vigilant to what you eat.

Jump to this post

Thank you Luann, It's such a struggle! I used to get extremely painful muscle knots in my trunk due to loss of liquids and electrolytes with all the diarrhea, but now I know to eat corn chips after a particularly sweaty hike and my cramps have disappeared, thank goodness.

I've tried cholestyramine and Entocort plus various combinations of Pepto Bismol and Immodium for my chronic diarrhea. The only thing that lessened the frequency of the runs was Entocort. It helped put some form into the watery stools I'd have sometimes seven times a day. But the side effects of that steroid were intolerable. I've eliminated veggies and fruits cuz they cause pain and bloating and increased runs. I mostly live on white stuff. My dog and I are both on the chicken, rice and cottage cheese diet. "-\ Watery stools never vary. I usually glug down P.B. in the morning and take two Immodium at night cuz it makes me sleepy and also causes my heart to go out of rhythm if I take more. Can't win!!

REPLY
1 reply
luannr | @luannr | Oct 31, 2022
In reply to @cathy5920 "Thank you Luann, It's such a struggle! I used to get extremely painful muscle knots in..." + (show)
@cathy5920

Thank you Luann, It's such a struggle! I used to get extremely painful muscle knots in my trunk due to loss of liquids and electrolytes with all the diarrhea, but now I know to eat corn chips after a particularly sweaty hike and my cramps have disappeared, thank goodness.

I've tried cholestyramine and Entocort plus various combinations of Pepto Bismol and Immodium for my chronic diarrhea. The only thing that lessened the frequency of the runs was Entocort. It helped put some form into the watery stools I'd have sometimes seven times a day. But the side effects of that steroid were intolerable. I've eliminated veggies and fruits cuz they cause pain and bloating and increased runs. I mostly live on white stuff. My dog and I are both on the chicken, rice and cottage cheese diet. "-\ Watery stools never vary. I usually glug down P.B. in the morning and take two Immodium at night cuz it makes me sleepy and also causes my heart to go out of rhythm if I take more. Can't win!!

Jump to this post

I do not know anything about Entocort.I will look into it. The only fruit I eat is bananas and s little pineapple. I love apple crisp but I have not had it in months. Ybanks for responding.

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mikaylar | @mikaylar | Nov 1, 2022

Tell me your symptoms. I have a friend that may suffer what you have.
Mikayla

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