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Vitiligo

Skin Health | Last Active: Jun 28, 2020 | Replies (8)

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@sarahjeanbrush

Hi! I have Vitiligo. I got it when I was 32 after I gave birth to my 8 year old. I do have autoimmmune in the family as my grandma has alopecia and my mom has thyroid and psoriasis. I have small spots in different areas of my body that have slowly been spreading. I have done a ton of research and tried lots of things. I have been doing the Autoimmune Paleo diet for 3 years. My spots did stop spreading when I started it for about 2 years, but they have started spreading again. I do laser on the spots at the dermatologist and also have a home unit. I am into essential oils so I found that using Bergamot oil on the spots and then doing laser has worked for some people. It did not work for me, but there were two other people at my dermatologist office that saw results after using the Bergamot that did not have results before. I also do accupuncture. In general, the laser and Protopic ointment is what I have used on a regular basis and I try all of the other things as well. I do organic spray tan to cover the spots sometime and try to stay out of the sun. Dermablend cosmetics is great for covering spots as well. There has been studies that the arthritis drug has been shown to repigment skin for vitiligo, but it is not approved for vitiligo so it is expensive and has a lot of side effects. I was told at my last appt. that they are trying to get the drug approved for viitligo so it would be a safer topical treatment. I hope this comes soon!

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Replies to "Hi! I have Vitiligo. I got it when I was 32 after I gave birth to..."

@sarahjeanbrush, Good Morning, and welcome to Mayo Clinic Connect! I am happy that you have joined Connect! Thank you for joining this discussion with this helpful information. We are a patient support network an we share and support and encourage each other by sharing our experiences.

I am in agreement that Dermablend cosmetics are a good product for coverage. I used to use it regularly. My vitiligo seemed to come in spurts with time intervals between it spreading. I did not take any treatment for it. My hair began to show signs with premature greying at an early age. And, like you I learned to avoid the sun because those areas burned so quickly. Unfortunately, I grew up at a time when tanning and sun exposure was a sign of being healthy. Now, though, my vitiligo has gone almost completely away due to prednisone that I was taking long term after my transplant. Now I am off the prednisone, and I guess time will tell if it comes back.

I hope continue to get results that are satisfactory to you.
Rosemary