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@loribmt

I’m thinking about the Zofran your husband is taking. It was a lifesaver for me and really worked to quell my nausea in the early months of transplant. But I also started to realize that it interfered with regular intestinal movements and I couldn’t go to the bathroom as well as usual. It stopped the normal peristalsis movement in my gut which tended to cause some nausea on its own. Immediately after a bowel movement I would throw up and then I’d be fine for the rest of the day. Once I was able to get off the Zofran that feeling was gone completely. But it was sure unappreciated for a few months. I wonder if this could be happening with your husband too.

Nausea can sure mess with an appetite. I’m sorry he’s going through this yet. You mentioned he’s on anti anxiety medication as well and sometimes that can be a source of nausea. So definitely discuss his ongoing lack of appetite and nausea with his transplant team…they need to know these types of things. Is he a healthy weight?

Exercise…how about walking? That’s the single most important exercise to get his blood flowing, help keep him mentally upbeat and also, it helps the body recover and maintain a healthy environment for the new immune system.
Being a caregiver of for allogenic transplant patient is a most difficult job. You have to be a cheerleader and a psychic, along with being a nurse with the patience of Job. How are you holding up?

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Replies to "I’m thinking about the Zofran your husband is taking. It was a lifesaver for me and..."

I am good. Thanks for asking. It is difficult to know how much to coddle and how much to push- I see him get discouraged snd really want to help - but sometimes it seems like he needs to be told to “suck it up”
I am looking forward to the next appointment. We feel fortunate to be feeling as well as he does.