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@maryb13350

Thank you for your response. He does see his doctors. He is down to every 6 months with monthly blood draws. He is being treated with Zofran and anxiety meds. I had not thought about GVHD of his digestive tract. We see his doctors in early December and will be sure to bring it up.
His GVHD was skin rash.
I try to push him to eat snd exercise as much as possible.
Thanks for the reply.

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Replies to "Thank you for your response. He does see his doctors. He is down to every 6..."

I’m thinking about the Zofran your husband is taking. It was a lifesaver for me and really worked to quell my nausea in the early months of transplant. But I also started to realize that it interfered with regular intestinal movements and I couldn’t go to the bathroom as well as usual. It stopped the normal peristalsis movement in my gut which tended to cause some nausea on its own. Immediately after a bowel movement I would throw up and then I’d be fine for the rest of the day. Once I was able to get off the Zofran that feeling was gone completely. But it was sure unappreciated for a few months. I wonder if this could be happening with your husband too.

Nausea can sure mess with an appetite. I’m sorry he’s going through this yet. You mentioned he’s on anti anxiety medication as well and sometimes that can be a source of nausea. So definitely discuss his ongoing lack of appetite and nausea with his transplant team…they need to know these types of things. Is he a healthy weight?

Exercise…how about walking? That’s the single most important exercise to get his blood flowing, help keep him mentally upbeat and also, it helps the body recover and maintain a healthy environment for the new immune system.
Being a caregiver of for allogenic transplant patient is a most difficult job. You have to be a cheerleader and a psychic, along with being a nurse with the patience of Job. How are you holding up?