Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

I'm in South Dakota and it's been going on a year and a half also for me again with no help from the medical field. I'm hoping that we find something out soon to treat this I certainly don't need any long-term permanent damage. I don't have numbness but I have pins and needles throughout my whole body it moves around in different spots. Now I've also noticed that I'm having heart palpitations and shortness of breath and then only happens once in awhile. I've tried many things from histamines to steroids and the only thing I find that helps is steroids but then that's just temporary and it comes back when you're not taking the steroids. Steroids are dangerous taking long-term so I can't do that. I hope you find some help

Try the antidepressant Paxol. It has really helped me with the "all over"
pins and needle neuropathy I still have from having guillain barre.

I will check into that thanks

I have had significant neuropathy issues for almost three years such as burning, pins and needles and stabbing pain. What has helped me is Lyrica, low dose naltrexone and Tylenol. I also use over the counter pain patches that temporarily help the pain in select areas such as joints and shoulder muscles. I hope this helps.

Did you have a covid shot.. if so which kind??

Ok, I was given, over several several months two of the vax starting with
M, the the M booster on Fall of '22. I reacter to the booster and my Dr
said not to take any more of the. Ovid vax. Had covid August '22, a mild
case, then Sept '22 came down with a painful case of long covid gut
syndrome.

Meant covid vax, not Ovid vax. Darn internet.

On Sun, Oct 30, 2022, 8:03 AM Carol
wrote:

> Ok, I was given, over several several months two of the vax starting with
> M, the the M booster on Fall of '22. I reacter to the booster and my Dr
> said not to take any more of the. Ovid vax. Had covid August '22, a mild
> case, then Sept '22 came down with a painful case of long covid gut
> syndrome.
>

I’ve the same and still struggling with burning foot, muscle spasm and weakness in legs. I’m just doing supplements.

Sunny 8 -
An important point about Covid that has not gotten as much emphasis as it should, is that Covid is virus that attacks the vascular system - basically a very dangerous condition called Vasculitis.

It is important to understand this because it provides a better perspective for seemingly unrelated symptoms.

The damage it can cause by limiting blood flow to multiple organs and body parts can show up as a cascade of new symptoms with the number and intensity of the symptoms related to the severity of the infection. Severe infections can have multiple often life changing effects, while less severe infections can have lesser consequences.

That said, your long Covid Gut Syndrome is likely an example of the Vasculitis causing gut wall damage. The list of those symptoms are very similar to the symptoms related to Celiac Disease - enough so that the CD management recommendations could help lessen the severity of your current symptoms.

Specifically, the first longterm effects of the onset of CD is a dramatic reduction in the absorption of vitamin B12 and the mineral calcium.

Why are they important? B12 aside from its nutritional effects is a very powerful anti-inflammatory and Calcium is the foundation of bones and the digestive process.

The recommendations for CD that could be helpful for long Covid sufferers are:
- Get gluten free
- reduce dairy product consumption
- limit the consumption of prepared foods (with unknown ingredients)
- adopt a meat and potatoes diet
- avoid alcohol based drinks including beer
- take B12 injections rather than orally
- if possible increase your consumption of vitamin C foods

And I would add, as a precaution,
blood tests for CD;
- HLA-DQ2 to check for the CD related gene and
- TgT test if you have been eating gluten containing foods for the last 6 months can provide evidence of active Celiac Disease.

Finally, none of suggested treatment will cure any CD you may have, but it can provide a template for how to manage your symptoms.

Chris47 -
PS - A CD sufferer for 40yrs.

Hyperbaric oxygen treatment, 10 sessions in a row made a significant difference in my brain problems from COVID.