Use of Prednisone and Improvements in Bone Density

@becsbuddy, I'm sorry that you can only manage a mile walk. Resistance training is good. I think I mentioned before to check out Carol Michaels on Youtube for some appropriate workouts. I did Pilates for 25 years+. Pain from the PMR made it impossible to do mat work, but now on Prednisone, I'm free of most pain. When I started researching appropriate exercises for Osteoporosis I was shocked to learn that many Pilates exercises - involving forward flexion of the spine (C curve) are dangerous for osteoporosis as they can cause silent compression fractures. The same is true for yoga. The National Osteoporosis Foundation has information about safe Pilates and Yoga. Also, Dr. Weill has a good article on osteoporosis and Pilates if you want to Google it. Best, tsc

@becsbuddy I was on prednisone from when I had my transplant in September 2016 until a few months ago. I sort of begged them to take me off of it and they reduced it and then took me off of it, adding in extra tests to make sure the effect was not bad.

I am really sort of upset though that when put on it I wasn't warned about the effects on bones so that I could have been proactive. I'm not sure if that's because Mass General makes it clear that they handle anything to do with the transplant and all else should be handled by your PCP or appropriate specialist so they figured my PCP would say something or what, but I plan to bring it up in the fall when I have an appointment.

Bottom line though is that my PCP dropped the ball completely so I ended up with advanced osteoporosis. I have changed PCPs now despite having a great rapport with my old one. I liked him a lot but I need to more than like him, I need to trust that he will pay better attention to what I need medically. The jury is still out on my new PCP, I've only seen her two times, once for the initial visit, and one other time.
JK

@becsbuddy I was on prednisone from when I had my transplant in September 2016 until a few months ago. I sort of begged them to take me off of it and they reduced it and then took me off of it, adding in extra tests to make sure the effect was not bad.

I am really sort of upset though that when put on it I wasn't warned about the effects on bones so that I could have been proactive. I'm not sure if that's because Mass General makes it clear that they handle anything to do with the transplant and all else should be handled by your PCP or appropriate specialist so they figured my PCP would say something or what, but I plan to bring it up in the fall when I have an appointment.

Bottom line though is that my PCP dropped the ball completely so I ended up with advanced osteoporosis. I have changed PCPs now despite having a great rapport with my old one. I liked him a lot but I need to more than like him, I need to trust that he will pay better attention to what I need medically. The jury is still out on my new PCP, I've only seen her two times, once for the initial visit, and one other time.
JK

I am 70, advanced Osteo, many broke and compressed back…. I am starting a vitamin/ mineral regime, I prayed for help been reading for 11 months… found this! Mira and Jayson Calton…. She at age 30 had edvanced Osteo and bones of 80 year old… had to sale great business and move where her family could take care of her…. She is now normal bones…. Look up fantastic! Makes total sense, put in your body what it needs and your body will do what it is supposed to do…. Heal and stay healthy… I have bought all I need and I am starting Monday. Much cheaper than algaecal and strontium that didn’t help me at all, got worse so quit after six months getting worse. Need all prayers I can get. I have almost lived in bed for 11 months, I have hope in God and giving my body what it needs to function…NATURALLY. NO DRUGS ! I have refused drugs making a unhappy dr, that never had an encouraging word, don’t think they know anything but drugs they just don’t have knowlegeand fuss at me and tell me how bad it is going to be….also will have
new doctor. First thing need is
vitamin and mineral blood test to see what I need …. And a dr that cares for my health! Found one too. Thanks for prayers in advance. I will post after first three months…. Pray this will give hope and encourage a lot of us. Some hope and good reports are good. Caltons have 2 books that really opened my eyes and understanding with hope and facts. One on bones and one on macronutrients. “The Macronutrient MIRACLE” about losing weight and REVERSING DISEASE, 28days results… and the other one was on Bones, can’t remember the name but I bought both eye opening to a lot of Questions I couldn’t find answers to… hope this helps and brings healing and knowledge.

@tsc. Ive been taking prednisone for almost 4 years for an autoimmune disease. I started on really high doses and now I’m in the process of tapering. Currently on 8 mg. No one put 2+2 together so I wasn’t started on a bone “replacement” drug until it was too late. I’ve been taking Fosamax for about 3 years but nothing has improved. I am now working with my doctor to replace the prednisone with CellCept (Mycophenolate Mofetil). It works the same as prednisone without the horrible side effects. We shall see!
Are you taking prednisone? Can i ask what you’re taking it for and how much?

I don’t know the answer, I’m sorry. My Dr wanted me on the drugs but I studied the good and the side effects of them and decided to search for herbal and natural remedies. I tried algie cal with strontium…. Mistake. Read and researched strontium… quit but didn’t help and took both for six months, not better but got worse so stopped, prayed searched and found Mira Calton and if she reversed her advanced Osteo with bones of 80 year old woman’s bone and her doctor told her to move where her family could take care of her… no hope! then I can. She was only 30 when diagnosed…. It took her years like 2 but she is normal bones today. Look up Mira and Jayson Calton. I’m starting all the products she used ! With prayer of my church family and friends! My husband has heart trouble he is going to start this with me. One thing for sure I won’t be damaging my body nor health. They have books you can read and videos to help you understand. I ordered 2 books , REBUILD YOUR BONES , 12 week osteoporosis protocol. The other is, THE MICRONUTRIENT MIRACLE, 28 day plan to lose weight, increase your energy, and Reverse Disease. AMAZING!!!! You will understand vitamins and nutrients and how to take them to get FULL BENIFITS from them for you bones and body! All their products are third party tested and the omegas are tested EVERY TIME. They patented two products so couldn’t be changed. So I hope this helps you. It is so stressful and confusing the choice you need to make. I am very advanced Osteo, but there is HOPE. I’m going to give my body what it needs to do what God made it to do. It took years to get me here so I know it won’t be overnight but it will start immediately in the direction or reversing Osteo and nourishing my body and bones. Pray and hope this helps you.🙏🌺😄pray a prayer for me. Their products for three months is much cheaper and better than others I have tried… OsteoPro and AlgaeCalPlus with Strontium Booster. Wish I had found Mira and Jayson first I feel I’d be much better now instead of worse. Just type their names in… God bless all our journeys to success! We do Not have a disease! We actually haves body undernourished. It is reversible just like all others are.😁♥️

Yes my mother fir bone cancer