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Axonal Sensory Neuropathy

Neuropathy | Last Active: Jul 22, 2023 | Replies (9)

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@pfbacon

Thank you! I'm in Bethany Beach DE, about 2 1/2 hours drive from Johns Hopkins. I didn't think of them. I'll try to get an appointment there. What did they do for you?
Peggy

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Replies to "Thank you! I'm in Bethany Beach DE, about 2 1/2 hours drive from Johns Hopkins. I..."

Peggy, good question - I had applied to both Mayo and Johns Hopkins. Mayo contacted me first, so I went to MN in Feb 2020. On Medicare, only MN will accept in 2020. In March 2020, pandemic hit and J. Hopkins contacted me. I said too risky to make appt. In mid 2021, I contacted them for a second opinion, and I wanted a more current evaluation of my PN. Went there in Nov 2021 with my Mayo results in hand, they confirmed all that Mayo said. Exam was 2 hours with a neurologist in field of PN. They did not do any diagnostic tests because of what Mayo did 20 months prior. I recently heard that Johns Hopkins expanded their neuro division. I guess a lot more people developing PN. I would suggest you make every effort to go to Mayo yet...do as I did, apply at Johns as well. Take the first appointment you can get. We live right across the Del Bay from you and yes, traveling is necessary to get the best answers and more importantly, the right answers. Good luck. Ed