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DiscussionFrom slow to very fast. What to do ?
Gynecologic Cancers | Last Active: Mar 4, 2023 | Replies (25)Comment receiving replies
Replies to "Hi, yes I was diagnosed with uterine cancer, cancerous cells in the endometrial lining."
Hello. It has been a long time since my post where I was scared as hell. All went very fast. All tests were done on 10/27, CT scan revealed left lymphnodes positive for cancer, consistent with metastasis.
So 10/28 morning, I had a standard full hysteroctomy, bilteral lymphedectomy (even if right lymphnodes were negative) as well as an explorative laparoscopy. All suspect visible tissue was removed, i am classified as a Stage 3c grade 3 rare sarcoma as per Hysterectomy pathology results.
I already have appointments with the Medical oncologist and a radiologist oncologist set up at the end of the month. With Post op mid December.
But due to the type of cancer, my case is presented to a Tumour board this Friday to come up with recommendations on the best next steps.
It is a real emotional roller coaster and I cannot really blame the hormones or a long history of anxiety and depression 🥴.
I recover physically very well (i think) from the surgery. @pugpeople describes very well the recovery process and progress. My only side effect is an occasional funny numb feeling at my left ankle. After talking with the doctor it is probably a pinched or stretched nerve during the surgery and it will go back to normal overtime. I go down and up stairs, carry (light) grocery bags, my cat (only 8 pounds little thing) without problems.
Next week, I will be able to get out to take care of other matters like flu shot, covid booster, dentist… mundane things, right ? 🙂…
My main fear is infections or blood clots so i am very careful with daily cleanup and with exercising my legs.
I dont know yet what the care plan will be but I am 59. At this moment i willing to do whatever it takes to get rid of this cancer.
Maybe i will change my mind later, as/if treatments get too hard on me or if/when recurrences overwhelm me.
I have read other recent posts and respect everyone’s choices. Our life experience, our philosophy on life, our gut feeling have often as much importance as the doctors recommendations.
All that said, I still have many questions 😅… i will keep them for the next days.
But I hope I can contribute too, to help others.
One thing i want to mention that may be controversial but it was necessary for my own sanity. When I was diagnosed and got my first biopsy report, my first reaction was to read and absorbe everything i could find on the internet, then on the Mayo Clinic web site, then on Connect.
It actually gave me a panic attack. Because of course, we tend to notice and remember the worst cases, the worst prognosis, the most heart breaking stories.
This is why I had decided to stay away from Connect until i could gather myself up.
I had laparoscopic surgery completed hysterectomy 8/29, adenocarcinoma in uterus, was told 10lb weight limit for 6 weeks, went back to work 2 weeks after surgery. Had too much energy to be just at home. Will be starting Chemo Monday, am somewhat worried about it, want to continue working just hope I will feel well enough to be able to. After Chemo am told will need radiation. It had gone complete through uterus to serous so cell where in the wash. Anyway, hysterectomy is the easy part. I will be finding out about the rest coming up starting Moday.
Take Care