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How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
I have PV but was resistant to taking Hydrea because you are not suppose to touch it with your bare hands, so my hematologist scripted me Anagrelide. It almost killed me, 1 pill and I almost died! So over 1 year later I started taking Hydroxyurea 500 mg every other night. My plt count has come down from 2024 in Aug. to 1520 as of yesterday with no obvious side effects. Of all the research I've done and all the medical professionals I've asked have no answers as to what causes these rare blood disorders but it was suggested it might be radiation?!?
Replies to "I have PV but was resistant to taking Hydrea because you are not suppose to touch..."
I take one capusle 500 mg hydrea MWF to keep WBC RBC and platlets in balance - 14 months now. No side effects that i recognize as of yet tolerating the med. Good to hear someone else is benefiting from hydrea. I've not heard touching the med being dangerous - interesting. Thanks for sharing and good luck way forward. Hang in there.......... 🙂
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I don't know what is in the anagrelide but it seems to have major side effects.
I know the instruction say to be careful handling the Drea but I have always just used my fingers to put it in my mouth with no issues. I'm glad it's bringing your numbers down.
One day you're body is producing normal platelets then suddenly its over producing . No one seems to know why...