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Diagnosed with pseudomonas aeruginosa infection in my lungs
MAC & Bronchiectasis | Last Active: Jun 27 9:33pm | Replies (85)Comment receiving replies
@irenea8 I should also add that no two people with lung disease are alike. Something that works for one, may not work for another. Your best bet is to rely on the expertise of your pulmonologist to work with you to come up with the best treatment plan for you. It is sometimes trial an error, but hopefully in working with a pulmonologist you can come up with what works best for you.
Replies to "@irenea8 I should also add that no two people with lung disease are alike. Something that..."
By the way is your current Pulmonologist at Mayo Clinic? We live about 4 hours from Mayo Clinic in Rochester. My current Pulmo is at the University of Iowa Hospitals and Clinics in the pulmonary specialty department and i like him. But i think about finding someone at Mayo instead who might be more thorough and up on NCFB.
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Yes for sure and i will keep that in mind. But my pulmo seems to go more by his knowledge of Cystic Fibrosis patients with Bronchiectasis. It seems older adults with NCFB are quite different in their treatments and reactions and it has been very helpful to share information and to be pro active. He has no other patients in my category which is Chronic Pseudomonas with Bronchiectasis (but not Cystic Fibrosis). Nor has he encountered anyone with so many other health issues. So finding answers has not been easy for me.