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Remission

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (34)

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@kathyhg

I’ve been on symbicort 100/6 mcg since early last spring. It was prescribed by one of my respirologists but the other one said I should try to cut down from 2 puffs twice a day to 1 puff twice a day and go from there because I should be on the minimum dose that sustains me.
I was on a nasal spray but i kept getting nose bleeds so I stopped. I’m not sure it makes any difference.
I’ve never been on oral steroids.

Thanks for sharing your experience!

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Replies to "I’ve been on symbicort 100/6 mcg since early last spring. It was prescribed by one of..."

Hi Kathy - my Symbicort dosage is 80/4.5 two puffs 3X/day. That seems to be my minimum for full function. I keep experimenting, but then I end up wheezing and reaching for a rescue inhaler. That jacks my heart rate up and makes my tremors far worse.
Like I said, all a balancing act. Hoping I don't need to increase when I get to dusty Texas next week.
Sue

By the way, I see 2 respirologists because of distance to the one who specializes in NTM. The one in my own community typically provides support between appointments with the specialist. She is the one who suggested decreasing symbicort.