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How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)
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@gmacookie

I have been on hydrea since 2016. I have tolerated it well on 500 mg per day. Then my counts started going up now I take it every day and 2 on Monday and Thursday with a baby asprin. They tried to give me anagrelide at the beginning but that caused really bad headaches for me. Has anyone tried that drug? It might be an alternative??? If you have problems with hydrea. I was really frustrated by the fact that no one knows what causes ET and that it is actually a rare blood cancer! I was never told that by any of the oncologists I have seen...

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Replies to "I have been on hydrea since 2016. I have tolerated it well on 500 mg per..."
robinll | @robinll | Oct 28, 2022

I have PV but was resistant to taking Hydrea because you are not suppose to touch it with your bare hands, so my hematologist scripted me Anagrelide. It almost killed me, 1 pill and I almost died! So over 1 year later I started taking Hydroxyurea 500 mg every other night. My plt count has come down from 2024 in Aug. to 1520 as of yesterday with no obvious side effects. Of all the research I've done and all the medical professionals I've asked have no answers as to what causes these rare blood disorders but it was suggested it might be radiation?!?

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