The Drs are at a loss. They all said the same. So I tackled what I thought would help. I started with diet. No acidic foods, no gluten, no sugar. A year now and it hasn’t helped. I put myself on NAC. It has been studied for use to help with many disorders. Autoimmune, lung etc. Still many studies in the works. It seems to have taken the edge of the breathing. I used to full on go into panic mode and flail around when I had SOB. Since taking NAC about 10 months now I feel it not letting me take a deep breathe but it seems to release quicker. Still there but bit better. That’s all I can think to do. Don’t want to do too much without being monitored.