Thank you Sue, Yes i know it is not approved for NCFB. But i wondered if anyone with Pseudomonas (NCFB) had tried it and what was their experience. Probably no one will report trying it since it is so expensive (hugely expensive) and Medicare probably will not approve it for NCFB. My Dr said 50% of the time they will approve it. I currently do not have part D anyway so i would have to pay out of pocket. It would be a big gamble. I tried Toby but had to stop it after just 5 doses.

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