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Tasigna side effect? How do I stop an itchy scalp and rash?
Blood Cancers & Disorders | Last Active: Mar 26, 2023 | Replies (26)Comment receiving replies
Hi Lori - Judy here keeping you posted.
Cutting my Tasigna from 600 mg to 300 mg daily has been the best thing ever. I've been on 300 for 8 weeks now and I feel wonderful. Very little itching, no brain fog, no depression, lots of energy and desire to be present again, to do things and to be with people. Had my first appointment Monday with my oncologist/hematologist since I had put myself (with his approval) on half dosage. He was pleased with my numbers. My first e1a2 numbers were 47.6969 (January 4, 2022), my second ones were 3.1753 (April 4, 2022) and my third ones were 0.3671 (September 19, 2022).
I'm praying the downward trend will continue on the half dose. I won't know for 3 months. In the meantime, I feel alive again with few side effects and no struggle.
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Oh, Judy, that’s wonderful that you’re feeling so much better. The toxicity from meds can be so overwhelming and that ‘one size fits all’ dosage doesn’t really fit all! I’m so glad your doctor was amenable to reducing your meds, even though you had to be your own advocate. Thank heavens! Look at you now, you’re like a new woman. 😍
The fact that your numbers are on a downward trend is really encouraging! Those were some impressive drops in 3 month intervals so keep up the good work and thank you for giving an update. You’ll never fully know the number of people you may have helped by sharing your experiences here.
We have a new member, @ ericloomis ( https://connect.mayoclinic.org/comment/765478/ )who is newly diagnosed with CML and is experiencing a great deal of body pain. Is this something that you’re dealing with as well?